Genetic and Rare Diseases (GARD)
What is the GARD Information Center?
The Genetic and Rare Diseases (GARD) Information Center is a program managed by the National Center for Advancing Translational Sciences (NCATS) and funded by the National Human Genome Research Institute (NHGRI). Its primary mission is to provide the public with reliable, up-to-date, and easy-to-understand information about rare and genetic diseases. GARD offers resources in both English and Spanish.
In addition to general information on rare diseases, GARD provides actionable guidance to help individuals manage their care and navigate the diagnostic process.
Why is GARD important for healthcare?
GARD plays a crucial role in supporting individuals with rare diseases and their families by addressing common challenges such as obtaining accurate diagnoses, accessing relevant information, and finding resources. By offering reliable and comprehensible information, GARD helps patients feel more secure about their conditions and treatment options. This knowledge empowers patients to make informed decisions and engage confidently with their healthcare providers.
Furthermore, GARD fosters connections among patients and families, providing opportunities for community support, learning about specialized care centers, exploring the latest treatments, and participating in research trials.